Showing posts with label medical conditions. Show all posts
Showing posts with label medical conditions. Show all posts

Wednesday, July 3, 2013

Angry



I am angry at my body
Betrayed by pain
Betrayed by blood
Betrayed by being female

I am angry at society
Stigmatize females for being female
Stigmatize the blood of life
Stigmatize the carrier of life

I am angry at the medical profession
No use of Mother Earth's medicines
Our chemicals won't help
Rip it out, its of no use to you anyways

I am angry at ignorance
No woman wants to bleed
Having babies is bad for your health
Have a hysterectomy and rid yourself of hysteria

I am angry at myself
Explore why my body has done this
Educate society
Educate the medical profession





Wednesday, June 12, 2013

Happy? Scared? FREAKING!!

Got a call today from a Financial Counselor at Hospital B. The lady was very sweet, asked me a series of questions. She then explained that they estimate the cost to be $10,000 and they would let me make a down payment of $100 and at that time they can contact Dr. F and schedule the surgery.

I am a very happy camper right now. 

I have already filled out the Financial Aid Application and sent it back with last year's tax return. It took me all of 15 minutes after the email arrived!

I believe I can pay the down payment on Friday morning. She said I could just call and pay with my debit card!!!

If the Financial aid Application is not approved, I will owe the balance but they will make arrangements with me that are well within my budget!!

Sorry for all the exclamation points but I am a very happy person right now. Blessed beyond belief.

Yes, going under has risks, especially for someone with COPD & Rheumatoid Lung Scarring. The recovery time may be prolonged as I also need a rectocele repair. Frankly, I am not sure which scares me more-going under or waking up knowing I may not be able to work for six weeks to three months. 

The prospect of being "normal" once again is very enticing.

All the rare but possible problems are running through my head--if this isn't done soon, I may turn yellow!!!


Tuesday, May 7, 2013

Does My Body NOT Want to be Healthy??






Sometimes I wonder. Sunday and Monday of this week I hated my uterus-my womb, they very thing that makes me a woman, enabled me to receive the most precious gifts God has ever given me--I hated it!

For about seventeen days now, I have not been able to get my pants on. Pants I wore one day were not at all comfortable the next, then gradually, each day, they are further and further from buttoning at all! Saturday I went to MeHarry Dental Clinic, for a student to fix one of my teeth as part of their licensing exam. It was five hours of sitting. So when my back was hurting so bad on Sunday morning, I chalked it up to all the sitting the day before and my spondylosis.

Determined not to live my life in a stupor induced by pain relievers, I don't keep anything for that. The day went on, just in slow motion. I canned the last seven quarts of potatoes I had and chopped and froze eleven quarts of onions. My boy friend helped by doing the lifting and going up and down the stairs to the basement. He got a pillow and put behind my back in the kitchen chair. Such a gentle, sweet and understanding man. By 8:00 p.m. I was more than ready for bed. The pain had wore me out but surely eight hours of sleep would fix that. . .

 Monday morning rolls around and the alarm goes off. I roll out of the bed realizing I am still in pain and the "period" part of the bleeding has begun. Okay, usually its not the first day that is so heavy, I have a dental appointment with my regular student today, no problem. WRONG! Between 4:00 a.m. and 7:00 a.m. I changed very soaked pads seven (yes 7) times!!! Okay, no way I can ride an hour to Nashville, then sit four hours for the dental student then wait around til my 1:00 p.m. appointment with the Oral Surgery Clinic for a consultation. So I cancel, explaining truthfully what is going on and decide that I am not making another appointment until something can be figured out about slowing, if not stopping, the blood flow.

See, the GYN wrote me script for Progesterone Injections (to be taken IM every 3 months) with the caveat I take a full (325 mg) aspirin every day as a deterrent to Deep Vein Thrombosis. Understandably, I can not have dental work done with that much aspirin in my system. I have to not take the aspirin for 5-7 days before a procedure and they are working on me every week. So no aspirin, no progesterone.

Monday was spent running to the bathroom to clean myself up and as the master bath is in the master (only) bedroom, I stayed in there most of the day, cleaning out and organizing.

The weight gain, swelling in my abdominal area is so bad that two Fridays ago, I went shopping and tried on every pair of pants, I moved around, bent over, sat down, squatted  did all the gyrations to make sure they fit before buying them. (I shop at a local second hand store that supports local underprivileged no returns) On the Tuesday after, all but one pair was tight. As the days went one, they got smaller and smaller. I promise I have not gained fat or muscle weight that fast. It is all in my lower abdomen, it will go away eventually. In the meantime, I wear one wardrobe. Hopefully, sooner rather than later, I can pull out the smaller, noting but me, wardrobe!

Just as a pregnant belly pulls on the lower back and causes pain, this swelling of my uterus is pulling on my back, causing the spondylosis to be worse and the pain is b-a-d bad! I feel like I need to get a maternity belt to hold the extra weight of my Adeno diseased uterus off my back!

The disease of Adenomyosis also saps your energy. Saturday when I got home around 5:00 p.m. I laid down on the couch to watch some television. At 5:00 a.m I woke up, crawled in the bed and actually got up, not tired around 7:30 a.m.!!! I am tired all the time. Some days are worse than others but I have not been at my best and energized in years now.

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Tuesday, April 9, 2013

Learning to Love Again--My Own Body

Now, I am not perfect in my thought process--like all humans (not just women, men too) I have always had issues with my body. Yet I have always been in touch with my body and loved it. For the most part, again not perfectly, I have taken care of it. Being a female and having moons (menstrual cycles) has never been regarded by myself as a sickness or curse or anything else negative. As a matter of fact I thought it a blessing.

Blessing you say? Why, YES! It sets us apart as women, as the life bearers of the human race. It is our "secret".

I have been in such connection with my body I always knew when I ovulated. I knew exactly when each of my babies was conceived. This gave me the unique privilege of knowing each of them  for 9 months (on average) longer than most women know their children.

I love my stretch marks and would never wish them away. They are a testament to those beautiful children and that I was blessed enough to be able to have children.

The effects of gravity and being pregnant 12 times has taken a toll on my breasts but how beautiful! No breast lifts are in my future.

There are wrinkles on face from smiling and laughing through all the good times and worrying through all the rough times. My reminders that Creator is wonderful and loving and life has lessons.

My hair? Well, I do wish it was almost to my knees again and it dries out and breaks and its stick straight and will not hold a curl more than a few hours IF it takes. But I care for it. I oil it and I braid it to protect it. I spend more than I'd like to get nice boar bristle brushes. Yes, there are gray hairs, right in the front! A testament to the whole world that I have been blessed to live long enough to get them.

My belly? Well, I could truly use a tummy tuck after a real good liposuction but that is just proof Creator has always blessed me with food to eat.

The varicose/spider veins in my legs and face? Just one more reminder that my Mama is also my Mother--no abortion, secret adoption or refusal to conceive at all. The ones on my cheeks actually just look like a gentle blush--no need for blush!

The funny toes that look sort of like a lawn mower ran over them and hit a few and missed some others? Well, another testament to my Hatcher blood from my Mama, so what if I have to use polish on the skin to fake toenails on them because the nails on several of them will just fall off every so often.

When I look in the mirror, I see me, in all my glorious beauty that the Creator has bestowed upon me.

But the hidden things, on the inside, have given me a false reason to begin to not love my body as much as I used to . See, I don't just have Adenomyosis. There is also Rheumatoid Arthritis, Psoriasis, Edema, Borderline Hypertension (that used to be full blown), Migraines, Spondylosis, COPD, and all the side effects and side conditions caused by these things. Sometimes it is too much to bear--add in life it self which has a way of getting in the way of living at times, and I become explosively depressed at times.

I do not want life to end (well, I understand that it will one day) but I seriously want it to be better. Living with constant pain, allergies and bleeding (from the Adenomyosis) is beyond aggravating at times.

The Adenomyosis is the worst for me right now. The other things have been constant companions for such a long time they are just old friends.


Rheumatoid Arthritis has its advantages--it gives me another reason to keep moving-so I don't lock up. Spondylosis keeps me ever mindful of my posture and proper body position when lifting, walking or doing other things. Edema reminds me to eat less salt and more fresh fruits and to take those needed rests (work an hour, rest 15 minutes with feet up). COPD reminds me to take it slow and easy-enjoy life and smell the roses. Migraines remind me to not do the things that trigger them-chemical air fresheners, worrying, and to take my allergies seriously.

Pain reminds me I am alive.

Notice Adenomyosis is not in that paragraph? I have yet to find any blessing in that. It is aggravating many of the other diseases, I am afraid to leave my home without a change of clothes. I literally have to bathe several times a day. Even with 2-3 forms of feminine protection in place at one time, I ruin clothes on a regular basis. I carry clothes and plastic bags and peroxide with me all the time.

Seeing as my research is showing many different things about this new part of me, the easiest fix is hysterectomy (or menopause) and I have no insurance--I must continue on with this. Creator has a lesson here. I must learn this lesson and come to terms with the fact my body has a different plan for my life's direction right now.

As sewing, reading, crafting, gardening and canning have always been therapeutic to my soul  maybe its time to delve back in. Time to get back in touch with MY body. Listen and understand what it is trying to tell me.




Monday, March 25, 2013

No Funds-No Surgery

This blog will continue as a source to let women know they are not alone, but I have decided to close the fund raiser and not have the surgery.

I have made choices in my past life that affect my current and future life. One of those was to leave an alcoholic husband. At that point I lost my insurance.

Centennial Women's Hospital has given me a huge a discount from about $35,000.00 to $6,000.00. The surgeon has decided not to charge me. I am very appreciative of these things.

I am a private, self-employed, elder care sitter. This brings in enough to cover my few bills but not enough to save any extra of a large amount. The nature of my work is that eventually my patient will pass to the next world. At that point what little I will have saved up will be needed to pay my bills and gasoline to go interview for another patient.

I have no serious problems with this choice. I have had the rectocele-in its current severe state since the OB used high forceps during the birth of my 3rd child in October 1989. Living with it has become routine for me at this point.

I have a mild cystocele. It is mild and not that bothersome--many women have a severe one and they do just fine without surgery.

As for the adenomyosis--it will go away in twenty years when I go through menopause.

Maybe my lesson here is in patience.  

Friday, March 15, 2013

The Headaches


Yep! That's about what it feels like every morning when I first get up. It becomes bearable after about an hour of being upright. And people wonder why I get up so early. 

They subside after a few hours but will return later in the day--my life has been scheduled around these for years. They are worse during the "period" time (I actually prefer to use the word "moon" but most wouldn't understand that.)

I have always taken spells of just not wanting to be around other people but during these headaches, I am a bear! Stay away from me. I am spending all my energy on not collapsing into a heap on the floor. 

These headaches are caused from being anemic.

The anemia is caused from the adenomyosis.

Please check out all the tabs above! 

Tuesday, March 5, 2013

Even the doctors! Really?

http://www.natures-blessings.org/PregnancyRebirth.html



When the doctor told me I have Adenomyosis, he told me that the cause is having lots of babies or having heavy babies. I have ten babies that weighed between 8 pounds 14 ounces and 9 pounds 8.5 ounces at birth. He stated the baby being in the womb pushes the endometrial lining into the muscle tissue of the uterus itself.

I have done lots of research since December 2012 and it all, except one website, says that is far from the case. They have no idea what causes it and many of the women with Adenomyosis, are virginal and teen age. Many women have it before or with the very first menses.

He also told me the only treatments are ablation-this where the inside of the entire uterus cauterized with hot water or an electrode. Sometimes you never bleed again, sometimes you do. The only other treatment is removal of the uterus or hysterectomy. Progesterone injections are a temporary fix for some and he did prescribe these for me, every three months as a temporary fix until I could have the surgery done.

Research shows there are many treatments, some invasive some injections, some taken orally and not all involve hormones.

Why does a GYN/OB, one male one female, in this day and age, believe that having babies automatically means you are going to have health issues? That having babies is in and of it self going to ruin a woman's body, when in fact God Himself created a woman's body specifically to carry and give birth to babies?

http://i37.photobucket.com/albums/e94/tobymutz101/art/kahlo_gaia1.jpg?t=1240356282

Tuesday, December 18, 2012

Talking to Surgeon

I went yesterday and spoke to the surgeon. She is a very sweet lady, I met her before, she did my biopsy. She explained to me that having adenomyosis, which is what they believe I have, is the better choice. I also need to have a rectocele repair. (I have had this for 22 years after a doctor felt the need to use high forceps on me & for reasons beyond any other OB/GYN, refused to repair it.)

The other option for adenomyosis is to have an ablation. This would be done out-patient and I would have to return for the rectocele repair. Also, though I prefer to keep my cervix, doing so, could cause the repair to by stress.

This sweet young surgeon does not charge for her work during surgery for Faith Family Clinic. (Please consider donating to this wonderful facility providing medical care for the working yet uninsured.).

She performs these surgeries at The Women's Hospital at Centennial Medical Center. It will be a laproscopic hysterectomy, leaving the ovaries, unless they have problems. Then the rectocele will be repaired.

She says I should up and about in 3 weeks, with restrictions such as no lifting, no floor care, etc. She will tell me fully after she exams how I have healed to that point.

Her surgery scheduler will call me soon and we will pick a date after the first of the year. Then I will go to the hospital and find out who my anesthesiologist is, how much they are going to charge me ($0-$?????) and what the hospital bill is going to be.

I believe I will schedule early in the year, say January, so I can be functional by time to put the garden in.

Tuesday, December 11, 2012

Facing Surgery

At 45 I have only had two surgeries and been under general anesthesia four times. The prospect of the "little death" is actually more scary than the surgery itself.

The first time was when my third child, David Israel, was born. He was posterior. My midwife had transported me to the hospital due to the fact I was having so much pain between contractions and my babies were so large. She also could not determine what part of the baby was presenting. Fear of a transverse presentation  (I did experience this with a later delivery) and a possibly rupturing uterus, we called for an ambulance.

This was not a good birthing experience for me. The doctor refused to allow me to have any support person what so ever in the labor room with me after giving me pain meds-actually giving me "Twilight Sleep". Had I known this before, I would have refused. Had it known it was "Twilight Sleep", I would have refused. In the delivery room, I was given ether, tied down by my wrists and ankles, "delivered of the child by use of 'high' forceps" and woke up later in a 3rd bed in a recovery room (3rd room), asking for my baby. I was told it was a male and nothing else could be told me to until my mother-in-law arrived. They refused to let my husband any where near me, with good reason for their safety. The child was born "coal tar black", not breathing, and suffered a seizure a few days later that caused enlargement of the ventricles in his brain which also results in shrinkage of the brain itself. This resulted in a diagnosis of Severe Spastic Cerebral Palsy.

You can only imagine how this affected my view of hospital births, (my previous 2 had been born at home), and anesthesia during birth. Please note, this happened in 1990.

The next time I went under general anesthesia was in 1994 when my fifth child was born. Sabrina Eden had been breech. My doctor attempted an External Cephalic Version. This child got transverse with her head right under my heart and very literally started shaking her head, "NO!" We could see it on the ultra-sound and my belly! She is still the child will dig her heels in!

Needless to say, her refusal to even go back to a breech position, resulted in a C-Section two weeks later when labor started spontaneously, four weeks early. (She weighed in at 9lbs. 3 oz. & was 21 inches long). This was a different doctor. Different hospital. Different county. Not the home-birth I had so wanted again, but a much better hospital experience than before.

My next general anesthesia experience was four years later in 1998, had my gall bladder removed after they saw "gravel" in it when doing an ultra sound of my kidneys. I came out of surgery with elevated blood pressure. I remember waking up to the recovery nurse telling me to open my mouth, she wanted me to take a sub-lingual dose of Corgard.  I had warned the doctors and nurses, before surgery, that this medication had been used on me before and it always bottomed out my blood pressure., a potentially life-threatening condition, especially as it dropped to something over 63. (Note-I was at the hospital I gave birth to David Israel in.)

The last time was in 2010. I had a LEEP procedure performed. I woke up once, no drifting in and out, no recovery of senses but no eyes open, just suddenly my eyes were open. The nurse came in a few minutes later, took my vitals, told me to go get something to eat, went over after-care instructions and sent me home. I puked my guts out as I stepped out of the car at the house.

As you see, I have mixed experiences  with "going under". I have some serious reservations about loosing body parts. (Have always regretted letting the gall bladder be removed.) But I have lots of things to consider here.

In seven short days I go talk to the GYN Surgeon to see if she will take my case or refer me to someone else. As a self-pay patient, making less than $20,000 a year, I am also considered a "charity" case. If she will take my case, I will need to already know what I want to do so that I can make pre-payment arrangements with her and the hospital.

The GYN agreed to administer an injection of Progesterone to buy me some symptom relief for 3 months. I asked for this. Those that have known me any length of time, will know that would not be a normal choice for me. However, I am sick of vaginal bleeding every day, menstrual cycles that have been diagnosed as "hemorrhaging", all degrees of uterine cramping, severe anemia and all of its symptoms.

I have been one of the lucky ones, to be very in touch with my body since a young age-in my teens. I always know when I ovulate. I know when something is wrong or right. I was very blessed to actually know the very moment of conception of each of my ten children and therefore to have truly known them and communicated with them from that very moment. I have always been at peace with my body and being a woman and having a uterus-bleeding on a regular basis. It was a a blessing of God. But in recent years, the past 3 or so, the spells of actually hating my body have become increasingly longer & more frequent.

I have 6 days to consider all the options and the pros & cons of each. My inner student is doing lots of research.